In today’s society, children engage their creativity through a number of ways: art, drama, and writing to name a few. Creativity is a form of expression, and can be possessed by all no matter an individual’s capabilities. Our bodies provide us with tools that help in expressing ourselves and our creativity to others. For example, our hands help us write an imaginative story, our eyes to read, our voice to read a personal poem, our muscles to act out a dramatic scene. However, a lack of such capabilities doesn’t prevent creativity, but forces children with certain disabilities to think of a new way to engage in certain activities. An experience that has opened my eyes to the different methods of creative expression was when I began to tutor an incredible little girl, Sophie Sullivan.
In February 2012, Sophie Sullivan, a healthy eight-year-old girl, suffered from a brain hemorrhage due to an eruption of an arteriovenous malformation. As a result, her fine and gross motor skills were affected, as well as her ability to communicate verbally.
After the incident Sophie couldn’t speak and as time passed, she began to make sounds, although still not words. Being a friend of the family for the past five years, I became Sophie’s tutor in October 2015. My first task was to try and develop an easy and convenient way for Sophie to express her thoughts and ideas. With help from her speech therapist, we created cards with letters on them that I taped onto a large board. From this alphabet board, Sophie used her eye movements and sounds to pick out letters to spell words and form sentences.
This strategy emphasizes how seeking alternative forms of communication can allow children with certain disabilities to effectively communicate and show their creativity. This opened up a whole new way of communication for Sophie and allowed her to express her opinions and ideas to myself, her family, and her friends Before, all those who interacted with Sophie had an idea of what she wanted or how she felt. But now, the board allows Sophie to explicitly tell us what is on her mind, her goals, and her dislikes—we know without a doubt. Her first Christmas card to her parents in 2015 emphasized how much Sophie appreciated her family and everything they did for her. It was extremely moving and made me realize that there is probably a lot this little girl has to say.
Children with disabilities should be able to participate in creative activities like their peers. A child’s ability to express themselves helps in development, but also gives them the opportunity to show others who they are as an individual – their values, beliefs, passions, and goals. Following the Christmas card, I encouraged Sophie to use the alphabet board to help her with her writing.
Over the summer of 2016, I discovered Sophie’s love of stories and fairy tales and thought it would be fun for Sophie to create her very own and wow, did she not disappoint! Princess Sophie’s Amazing Adventure is a fairy tale about family and coming together. It is full of excitement and adventure, and is centred around Princess Sophie, a princess who embodies love, forgiveness, and courage. Seeing Sophie’s excitement as she wrote and the creativity that progressed made me finally realize how writing can be about personal expression. It is a way for individuals to communicate to others their morals and important messages that are deeply rooted in who they are as a person. This story doesn’t only show how important Sophie’s family and friends are to her, but it also portrayed her as a caring, adventurous, and forgiving girl.
After reading about Sophie, I hope you see how anything is possible when there is determination and perseverance. Sophie’s accomplishment shows that anyone can reach their goals and be whatever they desire with the right attitude and support behind them.
Her disability did not stop her from pursing her love for writing stories; instead, it made those around her come up with a suitable, alternative form of communication that she could easily use to show her creativity. For families with children that have disabilities similar to Sophie or any disability in general, do not be discouraged.
It might take time to figure out a suitable method of communication for your child, but time does not correlate to impossible, rather, to patience. When the incident first happened in 2012, Sophie’s eye gaze and her ability to make sounds were not as nearly developed and controlled as they are today. Time is what Sophie needed to get to a place where she can effectively communicate with others and engage her inner creativity. Her story is a testament of how far she has come and proof that children with disabilities can engage in creative outlets that will make them feel heard and acknowledged.